In hospital...

TTony

poopot said:

 I am allergic to the one drug needed to keep me alive!...

That's an interesting challenge ...

Do you get something to suppress the allergic reaction?

poopot

TTony said:

poopot said:

 I am allergic to the one drug needed to keep me alive!...

That's an interesting challenge ...

Do you get something to suppress the allergic reaction?

Will find out next Thursday!... 
Its not just the fact that I react to it... the issue is it does cock all to my blood glucose!.
they put in a continuous measured dose and my bg went up!!!!!

GSPBASSES

Good luck with your operation, don't sound like much fun. 

poopot

GSPBASSES said:

Good luck with your operation, don't sound like much fun. 

Was in and out Saturday just gone... next Thursday is a follow up just so I can be told “get your house in order” basically...

currently sitting here watching the front door waiting for a delivery

Phil_aka_Pip

@poopot ; so sorry to learn that no kind of insulin controls your BG. Yours must be a weird kind of diabetes. In diabetes mellitus (like I have), I need to take metformin to fool my body into using the insulin that the gliclazide kickstarts the pancreas into producing, because I'm insulin-resistant, not insulin-dependent. Did you ask them if they are trying any techniques to fool the rest of your body into using the insulin you are being injected with?

poopot

Phil_aka_Pip said:

@poopot ;; so sorry to learn that no kind of insulin controls your BG. Yours must be a weird kind of diabetes. In diabetes mellitus (like I have), I need to take metformin to fool my body into using the insulin that the gliclazide kickstarts the pancreas into producing, because I'm insulin-resistant, not insulin-dependent. Did you ask them if they are trying any techniques to fool the rest of your body into using the insulin you are being injected with?

I was diagnosed t2 (insulin resistant) back in 2003 (two days after my 30th). Started on 2 metformin... bg totally under control... slowly the metformin stopped being effective so the dose was upped... ended up on 6 tabs/day... again good bg control. Then the metformin stopped being effective again so they added in gliclazide... bg back under control....

in 2009 it all stopped working again, tried every type of pill they had and nothing worked so they started me on insulin... for three months I was in crippling pain, loosing weight and my bg was still high (high teens and low 20’s). I told the doctor then ignore it was a choice between the pain or a sugary death I’d take the second one.

sent to a specialist who gave my an injection called Byetta... brilliant... bg under control almost over night. But it was only ever a temp measure... it lasted till about 2014...

so so I took myself off of all the meds to try and give my body a break... alpine bg followed!...

last year (feb) they started me back on insulin... for the last 12 months I have been in constant pain, I’ve dropped from 107kg down to 79kg and my blood glucose has remained high.

the docs have not believed anything I have told them... until they did their experiment Saturday just gone... 

now I’m being studied by everyone who can get a look in basically!!!

I am now not only insulin resistant but I have very little of my own...

the shit thing is, insulin is all they have... it’s the last resort for diabetics!... 

before insulin was discovered back back in the early 20th century, t1 diabetics just simply died!...

Hopefully they will come up with a magic solution... but I will believe it when and if it happens!... I’m a special case apparently!...

mum always said said I was one in a million

Grunfeld

@poopot -- Sorry to add an anecdote rather than anything substantial but my ex-gf is a Type 1 and was well-controlled on insulin (obviously) for years till for reasons still unknown* everything became erratic --- swings between hypos and 30s, and the docs couldn't get it under anything approaching good control.  Long story short she radially altered her diet as per the protocol in this book:  Dr Bernstein's Diabetes Solution.  Bernstein himself is a Type 1.  The diet itself is "cardboard & dust" is how my gf described it.  Point is, when she adhered to it bloods were normal values; when she didn't (cos the diet is strict), values began to go out of range (although not as bad as the first time but still teens and 20s -- and that's on a really sensible "normal" diabetic diet). 
I honestly don't know what the establishment view of the diet is.  Bernstein is a medical doctor but I don't know if he's a crank or not.  Can only say that it consistently controlled things for my ex-gf.


*  She's got a few other non-trivial medical issues though.

poopot

Grunfeld said:

@poopot -- Sorry to add an anecdote rather than anything substantial but my ex-gf is a Type 1 and was well-controlled on insulin (obviously) for years till for reasons still unknown* everything became erratic --- swings between hypos and 30s, and the docs couldn't get it under anything approaching good control.  Long story short she radially altered her diet as per the protocol in this book:  Dr Bernstein's Diabetes Solution.  Bernstein himself is a Type 1.  The diet itself is "cardboard & dust" is how my gf described it.  Point is, when she adhered to it bloods were normal values; when she didn't (cos the diet is strict), values began to go out of range (although not as bad as the first time but still teens and 20s -- and that's on a really sensible "normal" diabetic diet). 
I honestly don't know what the establishment view of the diet is.  Bernstein is a medical doctor but I don't know if he's a crank or not.  Can only say that it consistently controlled things for my ex-gf.


*  She's got a few other non-trivial medical issues though.

Will give that a look!... thanks.

Sambostar

If you can crack the wifi, probably worth joining Netflix just to watch the eleven seasons of Trailer Park Boys back to back.  It's the only thing on TV or other than alcohol that I found that could disable my neurosis and impulsiveness with for more than 30 seconds, so much so I could easily watch 6 20 minute episodes back to back.  Combination of a brilliant scripting, great characters and people I could genuinely understand and relate to.

Phil_aka_Pip

@poopot have they tried you on dapagliflozin? I'm on 10mg of that per day and its made all the difference between them telling me I must inject insukin, and them leaving me alone. btw I still have to do the metformin and gliclazide and watch my diet

poopot

Phil_aka_Pip said:

@poopot have they tried you on dapagliflozin? I'm on 10mg of that per day and its made all the difference between them telling me I must inject insukin, and them leaving me alone. btw I still have to do the metformin and gliclazide and watch my diet

I’ll mention that to them... 

the issue sue I have is that not only do the drugs not work, I can’t actually tolerate most of them now...

Phil_aka_Pip

Must be worth a try then. All the best