Parkinsons Disease

strumjoughlamps

Early stage Parkinson’s confirmed, and it is early, I am not too concerned.

it just made it real.

Snags

That's a bugger

Have had various friends with it over the years. One at the moment is on some kind of trial programme (I think it's still in trials) and seems to be doing really well, so fingers crossed ...

ESBlonde

A bugger indeed!

Current medical developments whilst not available next week, suggest there is hope. I'm sending good vibes and wishes.

boogieman

Blimey Dave, that’s a shocker. How old are you? Is it any better treatment-wise for you that you’ve developed it comparatively young? 

strumjoughlamps

boogieman said:

Blimey Dave, that’s a shocker. How old are you? Is it any better treatment-wise for you that you’ve developed it comparatively young? 

48 but I put it down to an essential tremor, probably was 46 when first noticed. Too early for heavy treatments they like to wait til absolute needed. Currently only needing tabs to reduce shake in right hand.

horse

One of my wife's best mates was diagnosed around new year, age about 45 I think. She had been noticing symptoms getting worse for quite a few months and it was noticeable in her walk etc.

The good news is that her medication has made a massive difference for her and her life is much more back to normal at the moment.

All the best for managing it going forward.

Teyeplayer

Just be careful and ask LOTS of questions. A friend was misdiagnosed, the medication created the symptoms and he proceeded to become more and more unwell. Don’t accept a diagnosis and just go with it; question the stages, question the treatment. The meds can do the most damage. Very very best of luck. 

Nitefly

Ooh, sorry to hear that, Strumster, but at least you do have it confirmed now.

Best wishes to you.

joneve

fucksake. Sorry to hear that Dave Wishing you all the best. 

My grandfather had it, so I have a slight concern that it may be passed down genetically. 

RobDavies

Sorry to hear that, chap. 

My Grandfather had Parkinson’s...albeit mildly.... lived well into his eighties and it didn’t affect his life too much apart from having to give up playing his beloved snooker.  

Good luck with it.  

wibble

Shit. Sorry to hear that Dave

Hootsmon

Thinking of you today Dave

John

merlin

Really sorry to hear that, I hope you're doing OK in your head/heart. 

strumjoughlamps

Turns out I’m stage 1-2. Worst year ever. 

MikeS

I don't know you, Dave. But my love goes out to you and I wish you the best.

Grunfeld

strumjoughlamps said:

Turns out I’m stage 1-2.

No, you're Dave.

You were Dave.  You're still Dave.

and strumjoughlamps  --- which honestly doesn't roll off the tongue but I prefer it to stage 1-2 which just sounds like a roadie doing a sound check.

You're still you.

strumjoughlamps

Grunfeld said:

strumjoughlamps said:

Turns out I’m stage 1-2.

No, you're Dave.

You were Dave.  You're still Dave.

and strumjoughlamps  --- which honestly doesn't roll off the tongue but I prefer it to stage 1-2 which just sounds like a roadie doing a sound check.

You're still you.

Yeah just having a feeling sorry for myself moment... I have next week off which is going to include many rounds of golf.

apparently there will be little movement in my condition for a while now. 

Tell you what tho, the things that can be found from things like blood tests and scans are absolutely amazing, and the timeframe in which they are done.

TTony

Enjoy the golf.

Dave.

mgaw

ffs and here's many of us worry about nonsense..very sorry to hear that Dave

Nitefly

Grunfeld said:

strumjoughlamps said:

Turns out I’m stage 1-2.

No, you're Dave.

You were Dave.  You're still Dave.

and strumjoughlamps  --- which honestly doesn't roll off the tongue but I prefer it to stage 1-2 which just sounds like a roadie doing a sound check.

You're still you.

Actually, @Grunfeld , that has struck the faintest of chords in my memory. 

I seem to to recall that "strumjoughlamps" was an amalgam or a piss-take of several other users' names, the only one of which I can now remember was JoughRustice - please tell me I'm not making that up?! 

Grunfeld

Nitefly said:

 I can now remember was JoughRustice - please tell me I'm not making that up?!   

@Nitefly It rings a bell but not with certainty. I’m often impressed by @DLM ’s forum memory.