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I use the Aspie term- mostly because I think we need *a term* to distinguish where people like you and I are relative to those who are quite a bit more disabled. I reject the notion of aspie supremacy entirely though, it isn't about being more or less disabled, it is just recognising the fundamental differences. We have different types of cancer or depression. We don't lump them all in together. I'd like to see more sub categories of ASD, really.
Studio: https://www.voltperoctave.com
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Me: https://www.jamesrichmond.com
Football is rubbish.
Agreed on autie supremacy; when I made my diagnosis work-public someone did pop up with "it's your superpower". I didn't really know how to respond, because I know it was meant kindly. Best I could come up with was "sadly also my kryptonite". I think it does explain why I'm very good at some of the things I do (particularly at work), but it certainly explains the things I'm really not good at at all. I think I'm very fortunate to have an employer who's willing to maximise the time I spend on the former and minimise/help with the latter.
I'm increasingly confident that I have ADHD as well as autism, but I have huge inertia to having an evaluation, partly because Bupa made the autism assessment process so painful.
Wait for the 'phone to ring.
Act dumb.
Know that the scene is very humdrum.
Take an extravagant journey.
Come from nowhere.
Go straight back there.
B'dum, b'dum.
Dont think I’ve answered the original question, just wanted to write all that down.
I’ve had a few people say to me since I was diagnosed that ‘we’re all a little bit adhd aren’t we?’. No mate, we’re not.
Or when people say they’ve got flu when it’s a cold. If you had flu you wouldn’t be at work, you’d be in bed wondering if you were dying.
Same for ADHD. They are medical conditions, not just being a "bit odd".
I went back to some of them at work and said actually you were right sorry I thought you were just winding me up. Most said yeah sorry I was trying to help I wasn’t being a dick, but quite a few told me that everyone is on the spectrum and that I’d only got a diagnosis for attention and to stand out and feel special.
I just thought how insecure can you be? That’s pretty much admitting you were making fun of me, and now it’s been confirmed you’ve associated that with being told I’m more special than you?
I ask this because US doctors have a tendency to find something, anything, that involves consuming healthcare resources. A condition diagnosis is a win-win: the patient is excused most of the responsibility, while the doctor gets to prescribe some meds. I have the impression that no one leaves empty handed!
US culture seems to believe that if something goes wrong, we need pills or treatment by an expert. I remember that scene in Monty Python's The Meaning of Life in which the woman giving birth in hospital surrounded by a team of medics cries out, "What should I do?!" The answer: "Nothing, dear. You're not qualified!"
He said “no, let’s not think about that”, said everything you just have, gave me some different tablets and referred me to CBT.
When I finally got to CBT the guy said to me he wasn’t sure if he could treat me because of the Autism, I might need something more specialist.
I asked what he was on about and he said it was so clear he thought I knew.
After 6 months I went a bit mental and suddenly I’d filled the requirements to get some actual treatment. Since I got that I’ve not felt depressed, and now I don’t take any tablets at all. If I’d gone off what the GP said I’d probably still be going years later wondering why I was still so mentally ill.
I'm offering those questionnaires because basically you need £2k - £3k to get a diagnosis and treatment in the UK at present, so I think it's probably a candidate for self-diagnosis for many people. Those forms are pretty good I think.
I told my friend who is diagnosed that I thought it was probably not worth the bother me getting diagnosed towards the end of my career. His Mrs got him off the phone and made sure she spent 20 minutes without him in the room, explaining that I should ask my wife and kids before deciding that. It turns out her husband has lots of trouble with everyday stuff that does indeed affect his family.
I asked my family, and they are OK with how I am now. I think it has really affected my career and education, and friendships, so if I was 20 again and found out, I'd be keener to find treatment, but I've already been through the crappy bits, coped, and found workarounds for things, and saved up for retirement already.
I think I said "what spectrum?" I thought the term was specific to autism.
Straightway I was thinking "a spectrum is just a sequence of states/values between 2 points, surely a gamut would make more sense? Especially if you were trying to combine difference types of illness in a word that groups them all together. Or is that an ADHD way to think....
Anyway, what's the point? Everyone has at least 2 medical conditions, I can't see why you'd try to say they were all part of some continuum or context, how is that helpful unless they are inter-related?
My band, Red For Dissent
I’m so tired of neurodiversity. A lifetime of depression & serious mental health problems, told by family & partner that of course I got diagnosed because I went private rather than languish years on various waiting lists, then 10 years later it’s super popular & now instead of complaining about me or constructively sacking me because I don’t fit in, I now get sympathy from everyone. Still zero understanding or real support when I’m having an existential meltdown.
Throw Crohn’s into the mix, as well as being left-handed, it often feels like the world has been designed from the ground up opposite to what I find logical. I’d never wish this crap on anyone.
oh, how do I stop myself from being distracted? Clear goals, time boxing, and a morning routine of planning my day, writing a gratitude list & meditating. That sometimes helps me be more self-aware of when I slip into autopilot. But more often than not I only notice when someone else points it out to me.
https://www.abtaba.com/blog/everyone-on-the-autism-spectrum